I’m so ready to feel normal again!! Yesterday was a bit rough – despite sleeping pretty well I still felt like my head was disconnected from my body when I woke up. One of the side effects of Perjetta is diarrhea, and that hit me as well. Fortunately, Immodium fixed that issue, but my digestion is still just not quite right. I feel hungry, but nothing sounds good. I’ve been eating anyway, but the insides of my mouth are still sore. I’ve been doing warm water rinses with 1 cup of water and 1/2 tsp of salt and 1/2 tsp of baking soda. They help a bit. So does chewing gum.
I never got out of my pajamas yesterday. Probably not the best idea. My mom always says you feel better when you get dressed – she’s right of course! I did have more energy yesterday than I did on Christmas Day, but I just took it easy. Played some table games with the girls, watched movies, and got some work done on the computer.
At the end of the day, I realized that I was starting to feel trapped in my own body, and wondering if I would ever feel like myself again. Those who deal with chronic illness must feel like this all the time. I can’t even imagine!
Today has been better. I feel like I’m turning the corner toward “normal” – whatever that is anymore. It’s been a week since my port was placed, so I was able to take my bandages off and take a proper shower – amazing!! (There are two incisions from the port, and you can see the one where the catheter is connected in the photo. The port itself is actually a little farther down.) I did some yoga, ate a good lunch, and now I’m looking forward to seeing my parents and my brother’s family soon.
Even better than all of that, I had a nice chat with God this morning too – gave Him my fears, anxiety, any negative attitude that I had, and asked Him to replace them with His JOY, PEACE, and HOPE for a better day! (I wish I could remember to do that EVERY day!) Thanks again for your thoughts and prayers – I still need them!
Jo Spencer
Amy, you are daily in my prayers. I read this verse this morning: Cast all your anxiety on him because he cares for you! (I Peter 5:7)
Amy Warden
Thank you, Jo!!! One of my favorites. ♥️
Steven Noren
Good morning! Glad you’re able to go to Salina today. Our family Christmas was postponed to next weekend (my birthday!) because of threats of freezing rain and snow, which fizzled down to rain showers. Continued prayers! God is good, but He’s not safe. (C.S. Lewis)
Amy Warden
So you’re not getting a foot of snow after all? 😆 Glad next weekend will still work for your family gathering! Hope we can connect before Labor Day weekend – it’s been way too long!
Brea Loar
You will continue to be in my thoughts and prayers, Amy. Every. Single. Day. You got this! ❤
Amy Warden
Thank you, Brea!! ♥️
Kathy Ford
I have heard from others who take chemo, that nothing tastes good. I am praying daily for your cancer journey. Love you, don’t overdo, and take care of you. Love you, sweet friend!
Amy Warden
Thank you, Kathy! I was glad my lunch actually did taste pretty good today. I’m sure it will come and go…
Beth
You have my prayers and best wishes for the best and most complete healing.
Amy Warden
Thank you, Beth!! ♥️
Deb Bonsall
You are in my prayers! Thank you for sharing and being honest!
Amy Warden
Thank you, Deb!! ♥️
TINA
It’s so important to be pick up good things in a day and I’m so happy for you, that you feel sometimes strong in your prayers. You look also beautiful and I love your positiv smile Amy!
Hugs, Tina
Amy Warden
Yes, each day has a bright spot! So very grateful!! ♥️
Shelly
Amy I’m praying for you daily. I’m sorry you are going through this. Grateful you can get treatment here. We took my mom to MD Anderson in Houston every 3 weeks for a year. God is by your side and holding your hand every step of the way! ❤️🙏🏻😘
Amy Warden
Thank you so much for your prayers, Shelly! So many have endured so much. You know that all too well. ♥️
Sheila Peltier
I’m hope you start feeling better soon. A few things I learned was to always put candy or apple juice or gum in my mouth when they push saline. I couldn’t figure out what the taste was in my mouth for a few weeks! But it was the saline that they push before and after each med. if you have something in your mouth then you won’t get the saline taste at all! I had no appetite for a few weeks because of that. Also, when doing your treatments, you need to chew on ice bits to keep your mouth cold! The cold ice keeps your mouth from getting the sores. The chemo doesn’t affect places that are cold. That’s one reason I didn’t do the “cold cap” to save my hair. My oncologist said that it would protect my hair but if I had any cancer cells in my head, then it wouldn’t kill them if wearing the cold cap. Those are just a few tips I learned! Please message me if you have any questions!! I needed all the tips I could get.
Amy Warden
I hadn’t heard about the ice chips – that’s a great tip! Thanks so much – I will definitely reach out soon. ♥️